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October 10, 2003     Heritage Florida Jewish News
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October 10, 2003
 

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PAGE 14 HERITAGE FLORIDA JEWISH NEWS, OCTOBER 10, 200~ g By Mavis Feinberg, president, Cure FD Foundation At the suggestion of California's Cure FD Foun- dation, October has been de- clared FD Awareness Month by Mayor James Hahn of Los Angeles, as well as by the leaders of the local Jewish community, including John Fishel, who directs The Jew- ish Federation of Greater Los Angeles; Rabbi Mark Dia- mond, who directs the Board of Rabbis of Southern Cali- fornia; and Rabbi Alan Henkin, who directs the Union of American Hebrew Congregations, Southwest Region. FD, Familial Dysautono- mia, is a neurological, de- generative, fatal Jewish ge- netic disease present from birth. Many sufferers of FD die in childhood. It is carried by 1 in 27 persons of Central or Eastern European Jewish descent. It is as common as Tay Sachs, and many hun- dreds of those who suffer from this terrible disease await the promising results that are beginning to come from the research focused on FD. Dr. Berish Rubin, chair- man of the Department of Biological Sciences at Fordham University, who, with his team of researchers, discovered the Familial Dys- autonomia gene in 2001, has published this summer both first-step and second-step breakthroughs at the University's Laboratory for Familial Dysautonomia Re- search in the search for life- saving treatments and a cure for FD. Parents of children with FD are reporting im- provements in their children's health. It is a hope- ful beginning. Rubin's lab reports that the amount of the functional IKAP protein that is normally absent with FD can be sig- nificantly increased by treat- 679-5144 Toll free 1-800-827-1097 or FAX: 679-6787 10069 University Blvd Orlando FL 32817 (De~ & Univerity) 740-0018 281-7666 "Foil free 1-888-548-7484 Toll flee 1-800-866-9554 or FAX: 74043096 or FAX: 281-8005 5689 Red Bug Lake Rd 711 N. Alafaya Trail, Orlando Winter ~, FL 32708 FL 32828 ater{ord Lakes) All ma~ cr~t cards ~ W~ se~o~ to AI. pans of tl~ c:o~. ment with tocotrienols, pounds which will increase profit corporation, with IRS spective parents can get which are members of the the amount of this critical 501(c)3 tax-exempt status, tested for FD. vitamin E family, protein, as heworks toward a formed in February 2003 for Contact Cure FD Founda- Early clinical studies re- cure for FD. the purpose of raising funds tion to find out how your veal improvement in the The implication of these for this urgent, life-saving organization or congregation health of FD children taking breakthroughs where re-research of Dr. Rubin's Lab could help in this urgent ef- tocotrienols. Rubin and his searchers can alter the ex- for Familial Dysautonomia at fort to find the answers that team of researchers contin- pression of genetic diseases FordhamUniversity.AsRubin will save the children with i uedthis research effort, and in those suffering from those pointsout, the breakthroughs FD and allow them a more within a short time, discov- diseases is of considerable they can achieve are in direct normal life without the suf- j eredasecondbreakthrough, significance. Funding to con- proportion to the amount of fering, and how to prevent another natural compound tinue the research into treat- funding the University's Lab future cases of this disease. J (an extract of green tea) ments that wilihalt the pro- for Familial Dysautonomia To contact the Cure FI) which, coupled with the gression of FD and save the Research receives Foundation: Call 310-459- tocotrienols, accelerates the lives of the many hundreds DuringOctoberFDAware-1056; e-mail amount of the critical pro- of children alive today with ness Month rabbis through- mavis.al@verizon.net; write tein IKAP which patients FD is needed, out the community will be to1029 Via de la Paz #128, with FD must have in order That is where Cure FD presenting programsandma- Pacific Palisades, CA 90272; to function more normally. Foundation comes into the terials to inform the corn- and visit our website Rubin iscontinuinghiswork picture. Cure FD Foundation munityaboutFD, howtohelp www.curefd.org for more in- of finding natural corn- is a California based non- fund the cure and how pro- formation. By Jane Ulman ENCINO, Calif (JTA)-- "Why is Grandpa Bill's photo in the sukkah?" my son Danny, 12, asks. "He's an ushpiz," I answer "Huh?" "A guest. In Aramaic " Jewish mystical tradition tells us to invite seven illus- trious ancestors -- Abraham, Isaac, Jacob, Joseph, Moses, Aaron and David -- into our sukkah. The Zohar, the basic text of the Kabbalah, says, "A man should rejoice each day of the festival with these guests." Two of the ushpizin, Moses and Aaron, lived in flimsy huts for 40 years as they led the Israelites through the WE LISTEN THEN WE DELIVER.v YOUR ONE-STOP INSURANCE SHOP FOR ALL YOUR INSURANCE NEEDS PERSONAL COVERAGES: Automobile Homeowners Umbrella Life & Health * Disability Income Long Term Care Nursing Home Annuities BUSINESS COVERAGES Multi-Peril Packages Fire Liability Workers' Compensation Group Insurance of All Kinds And All Other Related Insurance Products I Marshall L. Heibraun Quick & Associates, Inc. Insurance Agency 1300 S. Woodland Blvd. (17-92) DeLand, FL 32720 Phone: 1-800-432-6652 (407) 761-3521 (cell phone) 27th Annual Maitland Rotary Arts Festival Saturday, Oct. 18 and Sunday, Oct. 19 9 a.m. to 5 p.m. in beautiful Lake Lily Park 17-92 & Maitland Ave Maitland All Catagory Art Festival with over 225 artists Youth Art Exhibit (Orange & Seminole County Schools) Kids on the Block Puppet Show by MicheLee Puppets liana and lpm in youth exhibit area Food and beverage from well known local restaurants By Central Florida Restaurant Association k Voted Florida's Best Fall Art Festival (Sunshine Artists Magazine) Presented for charities by The Maitland Rotary Club and sponsored I~y Bob Dance Automotive Group; Heritage Bank; Progress Energy; WKMG Channel 6; WLOQ; and IVmter Park Maitland Observer wilderness. Sukkot reminds us of that journey. The other five also spent time in make- shift quarters after they were forced to flee from their homes. Abraham, for ex- ample, was commanded by God, "Go forth from your na- tive land and from your father's house to the land that I will show you" (Genesis 12:1). And David escaped from the wrath of Saul into the desert of Judea (I Samuel: 19:12). But these magnificent seven aren't our only impor- tant peripatetic predecessors. That's why the photo of Wil- liam Snyder, my maternal grandfather, born Velvel Schneider on July 10, 1890, in Bar, Ukraine, hangs in our sukkah in a place of honor, draped by colored paper chains my sons have strung together. Grandpa Bill was uprooted from his native Ukraine in 1912, not by God but by Mary Borko, my grandmother, who, enamored of neither the revolutionaries nor the czar- ists, consented to marry him only in America or Palestine. But first, in a compromise move, believing the impend- ing revolution would be ben- eficial to the Jews, my grand- father answered his induc- tion call to the Russian army, eager to prove that Jews could advance in the military. However, he found him- self permanently assigned to cleaning latrines and, after a year, went AWOL. He met up with represen- tatives of the Galveston Im- migration Plan, which, from 1907 to1914 brought 10,000 Russian Jews through Texas, rather than Ellis Island, and settled them in smaller Jew- ish communities throughout the United States. My grandfather was sent to Memphis, Tenn where he briefly worked in a foundry before traveling up the Mis- sissippi River to Rock Island, Ill. He boarded with another family and worked at the Moline Plow Company, earn- ing a dollar a day. A year later, he sent for my grand- mother. Yes, Abraham and the other ushpizin may have founded Judaism, but Grandpa Bill and our more recent ancestors have made continuity possible. Forsak- ing beloved parents and sib- lings, they undertook ardu- ous trans-oceanic voyages, battled language and cultural barriers and lived in impov- erished conditions so they DANNY ULMAN, 12, hangs a photo of his Grandpa Bill in his family's Encino, Calif sukkah. and their descendants could live freely as Jews. "Danny, if it weren't for Grandpa Bill and your other great-grandparents, you wouldn't be here decorating the sukkah," I say. "Yes, I would," he answers they better understand OUt collective journey." d I tried to do this researCO firsthand. " I "Tell me about Russia, often asked my grandfathe i "Feh," he'd answer. He spJ the word just like he alwaYS "I just wouldn't be me." spit the word "Russia." But thankfully we are us. "He left Russia and never And while I can intellectu- looked back, my mother ex- ally trace my Jewish identity plains. His parents died soO.n totheushpizinandotherhis- after his departure, toricfigures, Iviscerailytrace mother in 1912,his father ID it to Grandpa Bill and 1920. His younger brother' Grandma Mary. Beyond the Moshe Leib, was killed dUr" Passover seders and ing his first week in co.mO Chanukah celebrations, be- in World War I. His snS yond the borscht and the Pearl, .her husband and four blintzes, beyond their Zion- of their six children were ist activities, beyond my murdered by the Nazi s. l grandfather's love of reading brother Pinya and his tan- J Sholem Aleichem stories and survived, many of them tour" ing to Brooklyn in the 19905. my grandmother's talents as a Hebrew teacher, they trans- mitted to me a profound and solid love of being Jewish. So how do we thank these grandparents and great- grandparents? Granted we light candles for them on yahrzeits, the anniversary of their deaths, and name our children after them. And we enter their statistical data in our computer genealogy pro- grams. Sukkot provides another opportunity. And so, coincidentally, does my son Jeremy's ninth- grade Jewish and world his- tory class at Milken Commu- nity High School in Los An- geles, where he was assigned to research his great-grand- parents'journeys and present the stories to his classmates. "The first unit of study is identity," explains Fran Lapides, chair of the social sciences department. "The students trace their own family's journey to Los An- geles, establishing and un- derstanding who they are. Then, as they study history, But with determinati ' humor and, yes, some stUV" bornness, he built a new !if in the United States, runnl a grocery store, Snydet] Market, along with mY g ,ro t " mother, for almost 30 yea '; But family was his focUS. Nla when he died in 1986, atfl most 96 years old, he waS u,- devoted father of two, gr d: father of five and gren" grandfather of 11. . , My grandfather liveds Angeles the last eightYe y of his life. I used to O oldest son Zack, tovistt" at the Sl alom Retirern-e L Hotel. Zack, as a toddlU' ouid run down the hall 'aY and ra loudly on the doo My graPndfather wouid. lI it, see Zack and exclat'"' "Now this is This year, Bill as an h our sukkah, I can comI of Grandpa Bill?" sons. "Now this is a Jane Ulman is a writer in EnciaO, is the mother